There is “a lot of togetherness for families right now”, a friend said–knowing how people at home can get on one another’s nerves after nearly a year of social distancing.

I dream of hopping in the car and taking long drives. Drives that land me in other states, on a mountain or on a beach. The sound of ocean waves is high on my YouTube search list.

Our family is fortunate to have moved just in time to our condo where accessibility for Hubby is much better overall. Our youngest is attending college online this semester rather than returning to a dorm. It has been a comfort to know Son 2 is home when I mask up and go to work. If Hubby falls, Son 2 is here to help at least for now.

While things are far from perfect, I count blessings daily.

Hubby and I have opposite personalities. Often I either have a different viewpoint altogether or am mentally translating that we just said something similar in a different way. I usually recognize the style difference first while he argues his point. I wait, then eventually say, “we said the same thing” which he may or may not ever believe. This fact has worn me out for near 3 decades–long before ALS added to our mix.

I notice a lot of couples end up on opposite sides of the picket fence so I want to encourage those who end up as spouse, friend and caregiver. Caregiver is a twist of sour lemon, but you can carry on and survive. I even believe thriving is possible. Not there yet, but I’m considering what “thriving” might look like. Stay tuned.

Occasionally I have a little island moment epiphany. This week I was knocked over by the thought, “He’s still here.”

And, I’m glad.

I can still figure out how to hug him–awkward and on me to initiate, but it is possible. I can still ask his opinion about something. I can still find a moment to catch up about our sons. Once in a while something on TV makes him laugh, and that is my favorite few seconds of eye crinkling. Last night he was able to sit in a chair long enough to play a couple rounds of a board game. That was a win.

Still here is a lot better than not here.

So, we carry on.