Tag: ALS

CHAPTER FOURTEEN

Published on by Glenna S. EdwardsLeave a comment

We all stumble in many ways….

James 3:2

Stalker C does not pass out although her eyes may pop out of her head any minute. Her mouth remains slightly open.

Nightfall is near. The hours of rain bring darkness sooner than we anticipated.

SunFloJo looks at my camera and then nods toward the poo.

After waiting until Stalker C moves ahead of us, I take a picture of the bear scat.

“Thank you, sweetie,” SunFloJo says.

It is unclear if the poo pic is evidence for the search party when we go missing after a bear drags us away or for a tale to tell when we get back home. I do not ask.

We walk on through the increasingly dense trees.

Inside my head I chuckle. Turns out a bear does **** in the woods.

And with that thought, I instantly am in a squelched fit of giggles at the back of the line. I silently consider the creation of greeting cards and funny texts and who-knows-what marketing hype around the bear scat theme. Perhaps I am delirious at this point of the day?

I fall further behind, but I see the Steam Team’s colored backpacks ahead through the rain and dripping leaves. The trail leads us down, down, step over poo, down, more poo, down. Slide. Adjust footing. Down. We hear water flowing. It grows louder. Maybe there is a creek up due to the rain.

We must be getting close to Rapidan Camp. This is what I have been waiting for! 

Despite the water sounds, there is still more trail and time for my mind to wander. I think about our friend Deb and feel her in spirit. I bet she is thinking about us too. Perhaps she is looking at a copy of our trail plan. She likes historical places. We share that in common. I think about how she crafted the trail questions knowing that all four of us are at crossroads in our lives. 

The three ahead of me pause. I catch up with the group. I am out of breath. Maybe we will take time to rest.

What. Is. That? 

The group faces a fast-paced waterfall that crashes into something much more than a creek. It is a river.

As I contemplate the beauty of the waterfall–I want to soak in all the beauty today—I am surprised that SunFloJo begins to cross the river! 

Wait a minute.

Have we thought this through?

There is a big gap between the land I stand on and the land on the other side. With all the rain today, the water flows fast. The water looks deep. Much deeper than a creek anyway. We stand at the foot of the mountain we just descended and across from us is a new mountain to ascend.

My brain searches my memory of the map. I do not remember crossing a river at any point on the trail.

Is this Rapidan River?

I look down our side of the riverbank. Shouldn’t we be going that way? Along the river on this side instead of crossing it?

That may be an overgrown path to our left. It is hard to tell and just out of my reach. I can see debris and trees that are uprooted in the mud covering what may be where our trail goes. That looks like more of a trail to me. I am too tired to walk over and investigate. Every calorie burned matters at this point in the day. Also, I do not want to risk being lost from the team.

Why am I so darn slow that I catch up after decisions are made? Can we talk about this?

Nature is loud here. There is no talking.

SunFloJo is three large wet rocks into the river right along the bottom of the falls where the river is white from the rush of rapids. To the left of her looks deep and moves fast.

I squint to see a tree with a yellow blaze symbol on the other side of the river. Wow, I guess we are physically crossing the river. I was not expecting this at all.

Fearless SunFloJo looks back at us and points to the tree on the other side with a yellow blaze. I choose to trust that she knows what she is doing. That must be the blaze we are looking for to continue the trail. I must be wrong about staying on this side of the river.

Does she not know there is water underfoot that will take her away? Or is that just me being overly cautious?

Sunshine Rat is carefree with good balance. She makes it to the other side and waits for us.

Stalker C sways on a rock, then catches herself. She makes it.

I begin.

One rock. Two. Step, step. Rain continues. The sky is a dark green gray. My pack is heavy. Will the pack ruin my balance? Will I fall? The water races beneath me. One slip will be trouble. Please do not fall.

I use my poles to steady myself hoping they will not slip either.

Sunshine Rat points, “Watch that one. It’s wiggly.”

That was nice of her. I step quickly right, left, into the mud and arrive at the opposite side of the river. 

Whew! “Thanks.”

And then we are off on what feels like a fresh start. How can we start a new journey this late in the day? I am not sure what time it is. I wonder where in the heck is Rapidan Camp?

My concerns quickly fade because there is a new type of beauty over here. It is hard to imagine how each area could be so new to me in the woods, but this is different. My mind is all in even if my body screams. There is black earth underfoot with skinny trees and leaves stretching to a sky we cannot see. We climb up the hill, higher and higher above the river.

This takes a bit of physical effort, but thank you, Lord, this is gorgeous. Rain is heavy now and I do not care.  We make it to a ridge pathway that overlooks the river to our left down below. The river looks smaller as we travel higher.

We walk and walk. I ease into meditation again. No words come to mind. I am at peace. My mind is blank.

Nothing.

Bliss. Beauty.

Water drips from my eyelashes.

Higher and higher we climb. I forget the concern I felt when we crossed the river. I forget how tired my body is. 

We hear the water below and feel drops from the sky. My walking poncho tent somewhat keeps my backpack dry.

I remain in the back of the line. SunFloJo turns to check on me occasionally. I nod to acknowledge her kindness.

Now the trail slopes back down the hill overlooking what I still assume is Rapidan River.

The day feels like it gets longer and longer, but the dark sky seems to think the day is already done.  Hopefully, we get in and out of Rapidan Camp soon. We may only have a short visit since we have to walk another 1.5 miles after visiting in order to set up tents for the night.

Down the hill below me I see Sunshine Rat and SunFloJo pull out the official map. They consult with one another. They look serious. This barely registers in my brain because I am one with the trees.

Like me, Stalker C must have been in a Zen state. She abruptly stops her downhill inertia in order to not run over SunFloJo and Sunshine Rat. 

As I approach, Stalker C’s face turns in horror to look at me. In slow motion, her mouth says, “We might be lost. We might have gone the wrong way.”

This news is a magnesium fire starter. Flames engulf my peace.

With zero thought, words fly out of my mouth, “We should not have crossed that #*&%@%^ river!”

© Copyright 2016 Surrender On The Trail – Glenna S. Edwards

If you’d like to listen to the Audio Version or support this creative work, go to the Podcast SURRENDER ON THE TRAIL.

Thanks for reading or listening. Check back next Sunday for CHAPTER FIFTEEN.

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If you’re new and you want to start at CHAPTER ONE, go to the SURRENDER ON THE TRAIL page of this website.

I hope you have a great week!

CHAPTER ELEVEN

Published on by Glenna S. Edwards5 Comments

Be strong and courageous; do not be frightened or dismayed,

for the Lord your God is with you wherever you go.

Joshua 1:9

JUNE 2, 2016

8:15AM

“Birds are loud in the wild,” new friend Sunshine Rat said yesterday; a fact that remains true this morning.

The smell of fresh air whispers through the tent vents. My limbs feel nearly paralyzed, but my bladder screams for attention. I begin the physical journey to get on my knees, unzip the tent, gingerly attempt to stand, stumble, stumble again, then steady my stance.

Ouch. Everything hurts. I trust my body to rebound and take steps toward the bathroom. The grass is soft and damp against my toes along the edge of my flip flops.

After splashing my face with water, I return to open the big brown bear box. The metal is cold to touch. I find the s’more remains and sit down to eat a graham cracker before dismantling my travel home.

SunFloJo crawls out of her tent. We practice telepathy for a few minutes. She wonders about my status, my plan. I nod hello. A simple good morning acknowledgement is all I have figured out so far. I am thinking over the situation.

I appreciate the silence, though it feels like we have a conversation. I am not a morning talker in the city or in the woods. 

SunFloJo walks to get coffee for her and Sunshine from the Big Meadow camp store.

Upon return, she sets coffee cups with lids over the embers still warm from last night.  Sunshine will be happy to find coffee when she wakes up.

SunFloJo murmurs in my direction, “How ya doing?”

Moment of truth.

Slowly I dare to say, “I think I can do it.”

“Really?!” Her face is sincere, “I am thrilled. That is great news.”

“Benadryl is a pal. Semi solid sleep made a difference. Thank you.”

SunFloJo does not skip a beat. She shares her morning research, “I learned at the camp store that they don’t have places to store things, but we can rent campsite #2 and leave stuff in the bear box. I bet that will be helpful to all of us. Now that we know what we really need, we can leave the rest behind.”

“Wonderful,” I say.

“But there is a catch. We have to put up a tent so the site appears occupied.”

She continues, “Do you think you and I could put up your tent at site #2 and then sleep together in my tent tonight?” 

SunFloJo’s tent is the same size as mine, built for a party of one. I think about what a tight fit that will be for two people and how smelly we will be after another full day of hiking.

Then I think of not hiking with the weight of a tent, “Yes, I think we can do it.”

We can do anything for one night, right?

“I’m going to start unloading items into campsite #2’s bear box now,” I say.

“And we’ll switch shoes,” SunFloJo states. 

I will not argue. My toe pain was out of control yesterday. I do not think I can do that again. Wide toed hiking boots? I’m in.

We get busy unpacking, re-packing and setting up campsite #2. We leave behind every ounce of weight that we can. 

I debate leaving my emergency urinal but decide to keep it in my bag. It is light compared to the other items I toss. I take one change of underwear, one pair of shorts, and one pair of socks just in case I rip or mess my current Boy Scout clothes beyond the ability to wear them. I leave all but one bag of food. I can barely eat when exhausted anyway. 

The girls awaken. We compare items and select any duplicates that can stay behind.

Stalker C says to me, “You’re going?”

“Yes.”

“Good!” And then, “Thank God for Benadryl.” Sleep helped her too.

I agree.    

Sunshine Rat emerges wearing an emergency foil blanket wrapped around her. The foil is remarkably lightweight and only cost $1.59 at REI. I have one too, but it is on my leave behind list. Sunshine Rat smiles when she finds her coffee.

I am thankful to drop 10-15 pounds of stuff and hope I do not miss or regret leaving anything here.

A deer munches on grass next to campsite #9 in time to say good morning to Stalker C. Later a different deer eats near the bathroom. I suspect Rosemary and her representatives are expressing their solidarity with us and our adjusted plans. Sunshine Rat tries to get close to the deer for pictures.

I scan nature’s beauty across the horizon. The green is so alive in Shenandoah. Surely, I can come alive too.

Campsite #2’s ghost tent is set up. The bear box is half full.

MID MORNING

It is time to get back on the trail.

This is another no turning back type moment. I try to visualize sleeping next to random trees tonight. By nightfall we should be somewhere between Fort Mountain and Cat Knob along Laurel Prong which is the trail after we visit historic Rapidan Camp. I hope we can find the fire ring.

As a child and then as an adult with kids, I took tours of caves like Mammoth Cave in southwest Kentucky. During the excursion Park Rangers turned off the lights and told us to look at our hand. It was so dark that you could not see your hand at all. That is the type of dark I anticipate tonight minus a Park Ranger being available to flip back on the earth’s light switch.

I am not sure our headlamps will cut through the heavy darkness that will surround us. And if the mini lights do work, I am not sure I want to see animal eyes that might watch us.

SunFloJo’s boots are laced around my ankles. I wear the red backpack and adjust the straps, remembering both YouTube videos and instructions from Dick.

“We are not afraid to pull our straps,” we say in honor of Dick’s lessons.

“Don’t be afraid,” Stalker C says with her mouth in the shape of an “o” that reminds me of a Shirley Temple facial expression. Everyone’s backpacks are in position now.

Sunshine nods, “Yep, just pull those straps. Don’t be afraid.”

Are we really doing this?

Surveying the body language of the group, I think everyone is a little nervous about tonight.

—Because bears.

Stalker C reaches back to ring her bear bell. Her eyes widen when I look her way. SunFloJo consults her map one more time. She zips all but Flat Kevin’s head in a pocket so he can see the journey from her backpack.

We pass 30 other campsites and cross the blacktop heading toward Big Meadow Amphitheater. We look for our first route of the day:  Lewis Falls Trail.

We find the sign and enter the woods.

Ten steps onto the path, day hikers pass us immediately. Something catches my eye.

Was that a gun?

Two guns?

Sure enough, one couple is packing heat in their matching holsters and carrying small water bottles. They are out of sight quickly. I am glad.

The trail has lots of jumbled rocks underfoot. My feet manage much better today. And SunFloJo seems to sail along in my magic boots. I say silent prayers of gratitude.

Sunshine Rat says, “Let’s play a game.”

We agree.

“It’s The Centipede Game because we see so many of them along the trail.”

Sunshine continues, “Every centipede is 1 point.”

“A dead centipede is .5 points.”

“A deer is 50 points.”

“Bears are 100 points,” Sunshine says despite Stalker C’s “no” head shake in protest.

We decide a snake is -50 points.

“Chipmunks are 5 points.”

The consensus is that every time we reach 52 points then that equals 1 beer in the Tap Room at the end of the trip. I am not a beer drinker, but goals are probably a good idea.  

I hang at the back of the line. SunFloJo and Sunshine Rat lead. Stalker C is just ahead of me. 

Every few minutes the front of the line yells back, “1 point.”

“1 point.”

“.5” and so forth.

Over rocks, along a mountain ridge…

down,

down.

Don’t twist that ankle! Whew. Caught my balance. Thanks for the help, Trekking Poles.

More rocks, and more straight down yet I still feel we are at a high elevation in the forest. I keep an eye out for the waterfall this leg is named after.

Hands fly up and a jubilation cry occurs when we hear “52!” from the front of the line.

Like an accordion we fan out and then shrink closer to one another as the front of the line either rests or slows down to allow me to catch up. I overhear new topics of conversation.

“What do you think the pattern is, SunFlo?” Sunshine Rat asks.

“Could it be distance in-between?”

Sunshine, “I don’t think so. The spacing between marks varies.”

I eventually realize they are talking about the blaze trail marks on the trees. I have been wondering about those too. 

The “blaze” is a vertical rectangle painted on occasional trees that come in various colors to assure that you are on the correct trail. The White Blaze is the Appalachian Trail. We have seen yellow or blue rectangles on some of our connecting trails.

“Steep rocks,” Stalker C warns me of what is coming up.

Have they not been steep already? I grip my poles tightly.

“I think we’re almost there,” SunFloJo calls out to encourage me. We have been “almost there” about four times so far. 

Down, down, down. Up and over bigger rocks that I belly crawl over. Repeat.

And then we arrive at Lewis Springs Falls. I expected us to be at the bottom of a waterfall right where the water pours into a creek or river, but we face the middle of the rushing falls. If a waterfall wore a belt, we could touch it.

Above us, we see where the water tumbles over a large rock to begin the falls.

Below us, I cannot see exactly how far the water descends.

I am careful not to step too close to the edge that is comprised of wet rocks.

But SunFloJo inches closer.

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© Copyright 2016 Surrender On The Trail – Glenna S. Edwards

Thanks for reading or listening. Check back next Sunday for CHAPTER TWELVE!

Accept Help

Published on by Glenna S. Edwards9 Comments

Things are better for our family today than they were one year ago.

Or, today compared with the last seven years, seven years that got progressively worse until I thought my brain and heart might implode.

I felt fear typing the word “better”, but it is true.

Thank God.

And, thank people.

A key thing I learned especially the last three years was that help comes from the most unexpected places: complete strangers, acquaintances, neighbors, some friends, some family. There was a time when I would have refused help or tried to do it all my own.

I stopped being embarrassed of our mess and started saying yes.

Someone I trusted but did not know well sorted my jewelry and personal items. A team of painters from a church different from our own church came to our house for over a week, most that I did not know. Someone I barely knew out of town paid our electric at just the right time when I was debating the order and deadlines of bills. Grocery gift cards arrived. Encouragement came in the mail from both sisters (by blood and marriage) at just the right time every time. Someone ran a marathon to fundraise so that Hubby could get a mobile scooter. A friend spent 36 hours removing stubborn wallpaper at the condominium. One room had four layers! Eight women over 60 years old showed up to pack their cars with Rubbermaid containers to transport from garage to garage so that we could save time and money on moving day. This paragraph could be much longer with stories of miracle people showing up, but you get the idea.

One thing that rolled around in my head was that people do what they can when they can. I did not expect anyone to help. I think it is dangerous and mean to expect people to be there for you. For example, I am not a fan of Facebook chain posts that end with “and I think I know who will respond.” Yeah, no, at any given time, you do not know what someone is really experiencing or what they can make time for this minute or in this season of their life.

If you are going through a tough time, just be open without judgement. Say yes to those who emerge from the clouds. In addition, when you can, make sure you help others too. There are plenty of opportunities to be there for people when you can. Over the years, I have really enjoyed giving quietly when I was able. It was humbling to be on the receiving end. And, it was necessary to accept help. We would not have made it otherwise. Thank you to many.

When we have frustrating days now, I observe how quickly my mind thinks, “Thank You for my problems.” Right now involves acceptable water treading with a little space and capacity to roll with the waves. I feel the physical and mental stretch daily but nothing like recent years.

Last summer I was fortunate to visit Thorncrown Chapel in Eureka Springs, Arkansas. The building is constructed with glass walls that provide a sanctuary in the woods.

While there, I thought about its openness to nature. I considered my openness to surrender.

Surrender means saying yes to God through the stress. Surrender says, “Sure you can sort these items in my bedroom. Seems like a personal place, but let’s go for it.” Surrender says, “Thank you for adopting my son to celebrate his high school graduation in ways that I would not have been able at that time to provide.” Surrender says, “Yes, please interview and find us the best realtor for our situation.”

Surrender is also the word that came to mind back in 2016 when I was out of shape and said yes to a near week long hike on the Appalachian Trail with a team of women.

I knew the ground was sliding under our family’s footing. Something was wrong. I thought I was losing my mind over our oldest son going to the military at 17 years old. Maybe if I ran away to hike and sleep outside, then I could get alone with God to work out my mixed up feelings.

However, there was more.

And, God was preparing me.

“Surrender on the Trail” became the title of the manuscript I wrote about our wild experience in the woods. Imagine four women committed to staying outside to maneuver rocks and mountains for 35 miles. Imagine getting lost in the rain at nightfall. Imagine tears and flies buzzing with an incredible 4,050 feet view above sea level.

I am thinking about publishing one chapter a week here on the blog. What do you think?

The manuscript has been complete and edited for a long time. Something in my heart does not feel like continuing to query publishers or literary agents right now. What if I make it available here?

People from 34 countries read this blog last year. What if I simply share?

If you have comments or ideas about this idea, please let me know.

Thanks,

Psalm 121:1a ~ I lift up my eyes to the hills. Where does my help come from? My help comes from the LORD….

Capture

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When a baby comes along, one hears “Enjoy them, they grow so fast” on repeat.

I took mental pictures of our tiny babes, memory videos of their first steps, wrote down funny things they said, and worked as late as it took to pull off birthday surprises and holidays.

But almost no one tells you how fast your marriage will go. One thing I do recall someone say at our wedding, “Look around. You’ll never see this many people who love ya in one place again until your funeral.”

Well, that was encouraging. Eek.

I’ve considered lately how much I cannot remember about the years with Hubby in the way I can with the kids. While there are some thoughts to revisit, it is not as easy to find the rewind button or scene selection.

So, these days I take time to freeze the frame when we laugh at a show together, when he talks the boys through a decision or when he reassures me that I’m doing pretty well considering. I even capture the kindness when he shuffles away to give me alone or reading time. He knows I need the quiet to recharge.

No one tells you that there may be a season of marriage when you feel a ping of jealousy seeing random people much older than you walking around together at a mall or on the street.

I remind myself that everyone has unseen burdens. Life sprinkles the challenges out to folks.

Still. It can be difficult to play out your hand while not wanting the game to end.

So, we’ll capture in each day what we can. The mundane is no longer dull. The hurdles mean we are breathing. It is the life we get to live each day.

Scorpions & Snow Plows

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The subconscious mind is a place for truth though we may not recognize it at first glance.

Three nights this week included the constant noise of a mechanical bobcat in battle with the snow. I felt gratitude for the man driving the machine 12 hours at a time. I felt challenged by 3am continuous “beep, beep, beeps” that prohibited my ability to sleep.

I have struggled with bad dreams and waking up a smidge anxious for months anyway. Changes and stress have a way of demanding attention even when waking hours seem fine.

This weekend I have been able to sleep. And, I have been able to tackle neglected writing projects. It feels good to dive in where I felt stuck for a long time.

I suppose no one takes next steps until they are ready. Creativity calls. Only some hearts answer.

Then last night in my dream I was with Hubby, a wheelchair, and we were in what I would call the universal church fellowship hall of the 1970’s and 1980’s. I bet you can visualize the paneling, folding chairs and posters that were hung on walls far too long. Church was done for the day. Hubby was pleasant but tired. It was time to go back to where we were staying in Florida. Bonus: it was a travel dream.

Then I look down and see a scorpion. It seemed bad. But was it? I wondered.

I went to get a church deacon type to help. A young person ended up walking in to confirm that the creature was what we thought.

We weren’t afraid. There were simply things that needed to be handled.

Once awake, I looked up dream symbols. Sometimes dreams are pretty obvious regarding what’s on one’s mind. And other times a random symbol stands out. I mean, it is not like I see routine scorpions where we live in the upper Midwest.

I found that the scorpion can mean making peace with a challenging situation and moving on.

So the scorpion symbol added up fairly well. Life is semi-hard. Mostly I give thanks for my problems because things could be far worse. I try to be happy in the right now. And, the moving on part is likely because I am able to work on special writing projects that have waited for me patiently.

Thanks for reading and sticking around all these years. The best is yet to come.

Valentine Antidote

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It is that day when I promise once again that next year I won’t be in town on Valentine’s Day. I will be with girlfriends or on a beach, on a mountain top, anywhere else doing something–anything–not so ordinary.

Valentine’s Day is a double whammy. It’s also my birthday. Growing up, I loved celebrating with red hearts, white paper lace, pink streamers, balloons and all things Valentine.

As an adult, I realized many people have jumbled emotions linked to February 14. Happy feelings, angry feelings, dread, anger and so forth.

Then I married someone who expresses love inversely to what I anticipated. Let’s just say his first romantic gift was a bright yellow personal alarm to wear on my waist so I could pull the cord for it to wail and screech if someone nefarious came too close to me on my college campus.

We’ve worked it out. It’s taken a lot of tears and years. I’ve learned that the antidote to my occasional sad feels is to have less expectations, ask for something specific if desired, support or help others.

These days, ALS-21 plus a Pandemic make it so Hubby can’t get out to shop, or walk much, or feel good for a full day. I am happy simply when his words are kind. I like thoughtful and kind. Lately, I’ve been quietly thanking the writers of Call The Midwife. Hubby really likes that show. I call it his daily empathy exercise. Women have been through so much and that binge worthy series does not shy away from hard topics.

Speaking of writers, my feel better about Valentine’s Day activity this year was to support authors I care about. I directed Hubby to my wish list and he placed the order. I was excited to open the packages.

Janine Rosche is an author who picked me up off the floor when I received a bad news phone call at a writer’s conference. She prayed with me. Then I found out she was looking for a certain agent to meet. I am thrilled to say they met indeed and are three books into a successful journey. I now have a trifecta of inspirational romance to read:

William Klein’s book was lost in our move so I needed a replacement copy. This is a timely fictional story about a painful border experience.

And Jessica Terry is a writer that cracks me up with her Instagram stories. Like me, she was a basketball player in her youth. We’ve never met. I appreciate her work ethic and passion. So, I soon will read:

Who would you like to support? Someone creative? An organization that does something you value? Church? Someone elderly or ill? Doing a little something for others could brighten your Valentine’s Day. Earlier in the week, I called a couple people who I hadn’t spoken with in a few years. It was a good time on old fashioned phone calls.

Frequently, I think of the verse Love One Another (John 15: 12). Loving others does not result in only one direction of good vibes even when that should be our intention. When you love others, the good feels return to fill your heart and strengthen the weave of the universe.

Still in town,

P.S. Hubby also visited the Shari’s Berries website. Winner. Yum.

Still Here

Published on by Glenna S. Edwards3 Comments

There is “a lot of togetherness for families right now”, a friend said–knowing how people at home can get on one another’s nerves after nearly a year of social distancing.

I dream of hopping in the car and taking long drives. Drives that land me in other states, on a mountain or on a beach. The sound of ocean waves is high on my YouTube search list.

Our family is fortunate to have moved just in time to our condo where accessibility for Hubby is much better overall. Our youngest is attending college online this semester rather than returning to a dorm. It has been a comfort to know Son 2 is home when I mask up and go to work. If Hubby falls, Son 2 is here to help at least for now.

While things are far from perfect, I count blessings daily.

Hubby and I have opposite personalities. Often I either have a different viewpoint altogether or am mentally translating that we just said something similar in a different way. I usually recognize the style difference first while he argues his point. I wait, then eventually say, “we said the same thing” which he may or may not ever believe. This fact has worn me out for near 3 decades–long before ALS added to our mix.

I notice a lot of couples end up on opposite sides of the picket fence so I want to encourage those who end up as spouse, friend and caregiver. Caregiver is a twist of sour lemon, but you can carry on and survive. I even believe thriving is possible. Not there yet, but I’m considering what “thriving” might look like. Stay tuned.

Occasionally I have a little island moment epiphany. This week I was knocked over by the thought, “He’s still here.”

And, I’m glad.

I can still figure out how to hug him–awkward and on me to initiate, but it is possible. I can still ask his opinion about something. I can still find a moment to catch up about our sons. Once in a while something on TV makes him laugh, and that is my favorite few seconds of eye crinkling. Last night he was able to sit in a chair long enough to play a couple rounds of a board game. That was a win.

Still here is a lot better than not here.

So, we carry on.

Savor the Pour

Published on by Glenna S. Edwards5 Comments

Time to close the year 2020. I have written very little since moving into our new place this fall. However, I am beginning to feel a creative flow return.

Like many, I welcome 2021.

In recent days, I take time to enjoy the red tea pot that our son gave me a few years ago.

Whether adding hot water to a mug of chocolate or tea, it is the moment when the spout tips into the ceramic that I savor the most.

Steam, pour and stir. The stillness. The seconds just for me. The peace.

I feel mindful in those brief moments. Present and alive.

And that is my wish for you. May peace fill your soul.

Happy. New. Year.

But Not The Baby’s Wagon

Published on by Glenna S. Edwards1 Comment

Once upon a time, back when I thought I was tough, when I believed wholeheartedly that life will be what you make it, when I never cried at movies or much of anything besides a broken heart, my future husband and I took a road trip.

He played his favorite songs through the car cassette player. “Listen to Sammy Kershaw,” he said. “If we are going to get married, then we have to promise never to let this happen.”

The song was Yard Sale. The lyrics played:

Cardboard sign says yard sale
Real estate sign says sold
Family picnic table
Holds all that it can hold
On the grass and on the sidewalk
Well there must be half the town
Ain’t it funny how a broken home
Can bring the prices down

Oh they’re sortin through
What’s left of you and me
Paying yard sale prices
For each golden memory
Oh I never thought
I’d ever live to see
The way they’re sorting through
What’s left you and me

You left two summer dresses
In the backyard on the line
A lady just brought them to me
Says she thinks they’ll fit just fine
Well there goes the baby’s wagon…

By the time the baby’s wagon is sold, my lips are quivering.

Tears. What the heck?

And ever since that 19 year old day, I joined in on his idea of divorce not being an option.

When Hubby was diagnosed in 2017 with ALS-21, soon could no longer work, and he had to crawl if stairs were involved, I saw the dim light arrive over the home we once were determined to grow old in together.

I knew we’d have to leave.

And I knew our very real children’s wagon was in the garage. Do our sons need it anymore? Uh, no. Did we love it and use it a lot? Yes. That wagon toured the neighborhood many days, helped with Halloween, Cub Scout popcorn sales, and gardening.

I have cried about leaving our home for weeks while keeping my body sorting, packing, dragging, etc. Moving out of a home you’ve lived in over 20 years is more of a feat than a project. Plus, when leaving is a “have to”, the work can be extra painful. My heart resisted while my body ran the metaphoric marathon.

Then I learned that a 5 year old is part of the new family who bought our house. Turned out, she would like to have the wagon.

Take that, ALS-21! You can not have our babies’ wagon!

And that made me feel good. The wagon will live on in our neighborhood for a little while longer.

We are 4 hours into condo life without overlap with the house. There is a peace in seeing Hubby get around much better here. My mind & tired body will settle into the peace soon I hope.

Speaking of marathons, next Sunday Lisa Zupan is running 26 miles for two causes. One of the reasons is to help purchase a scooter and car lift for Hubby. If you would like to donate, click here.

God bless you through the many chapters of life.

Love,

Glenna

Goodbye, House.

Have fun, Wagon!

Grieving A Place

Published on by Glenna S. Edwards5 Comments

This may be the last blog I write from the home we have lived in over 20 years.

I knew the uphill battle of grief kicked in when random tears began showing up at various times of the day two weeks ago.

Anxiety woke me up in the mornings via a scary dream or a feeling of panic or a headache well before my alarm. If you know me, this is wildly different than my zero problems with sleep usually.

How will I manage the calls that need to be made? Will contractors show up at the new place or old on time? Have I packed enough? What still needs to be thrown away? How will I do this physically, at this point, mostly on my own in the time of Covid-19?

And then sadness: Our grandchildren will never walk through the same doors our kids did.

I tell myself it is just a place.

Then I Marie Kondo try to honor and thank the house for the time we’ve cherished together.

I pray. I dream of an easier lifestyle.

I feel nervous about the multiple pages of condo rules. There’s no vacuuming after 9pm, for example. I kid that I am moving into assisted living at 48 years old.

Then I try to visualize a much simpler way of being. The idea seems serene to soon be able to write or exercise over yard work any day of the week. I am leaving yard tools behind–that feels out of control for this girl! I ponder if friends will allow me to occasionally pull their weeds. Seriously.

I read author Bill Klein’s blog post about Change after a startled 5AM awakening. He writes “The trick in dealing with change is in fanning the flames of optimism and possibilities that exist. How do we get the mind to recognize the power of possibility to inspire the imagination to arrive at new possibilities when we are facing fear at its most daunting?”

So I will try to fan the optimism and the thoughts of Hubby being in a safer situation. It is scary to live here currently with stairs, etc. I am frightened when I leave for work, and I stress about missing time together in the hours I spend working on the house.

Soon all the rooms he needs will be handy. I like the idea that we will be able to leave the condo behind any time we want for a short jaunt or trip. In some ways, we will be able to spend more time together. The next chapter will be more manageable.

If I could flip the switch and be on the other side of moving and the other side of these feelings, then I would. Instead, life demands that one feel the grief for a little while.

There’s no way out but through. Keep going.

Love,

Glenna