But Not The Baby’s Wagon

Once upon a time, back when I thought I was tough, when I believed wholeheartedly that life will be what you make it, when I never cried at movies or much of anything besides a broken heart, my future husband and I took a road trip.

He played his favorite songs through the car cassette player. “Listen to Sammy Kershaw,” he said. “If we are going to get married, then we have to promise never to let this happen.”

The song was Yard Sale. The lyrics played:

Cardboard sign says yard sale
Real estate sign says sold
Family picnic table
Holds all that it can hold
On the grass and on the sidewalk
Well there must be half the town
Ain’t it funny how a broken home
Can bring the prices down

Oh they’re sortin through
What’s left of you and me
Paying yard sale prices
For each golden memory
Oh I never thought
I’d ever live to see
The way they’re sorting through
What’s left you and me

You left two summer dresses
In the backyard on the line
A lady just brought them to me
Says she thinks they’ll fit just fine
Well there goes the baby’s wagon…

By the time the baby’s wagon is sold, my lips are quivering.

Tears. What the heck?

And ever since that 19 year old day, I joined in on his idea of divorce not being an option.

When Hubby was diagnosed in 2017 with ALS-21, soon could no longer work, and he had to crawl if stairs were involved, I saw the dim light arrive over the home we once were determined to grow old in together.

I knew we’d have to leave.

And I knew our very real children’s wagon was in the garage. Do our sons need it anymore? Uh, no. Did we love it and use it a lot? Yes. That wagon toured the neighborhood many days, helped with Halloween, Cub Scout popcorn sales, and gardening.

I have cried about leaving our home for weeks while keeping my body sorting, packing, dragging, etc. Moving out of a home you’ve lived in over 20 years is more of a feat than a project. Plus, when leaving is a “have to”, the work can be extra painful. My heart resisted while my body ran the metaphoric marathon.

Then I learned that a 5 year old is part of the new family who bought our house. Turned out, she would like to have the wagon.

Take that, ALS-21! You can not have our babies’ wagon!

And that made me feel good. The wagon will live on in our neighborhood for a little while longer.

We are 4 hours into condo life without overlap with the house. There is a peace in seeing Hubby get around much better here. My mind & tired body will settle into the peace soon I hope.

Speaking of marathons, next Sunday Lisa Zupan is running 26 miles for two causes. One of the reasons is to help purchase a scooter and car lift for Hubby. If you would like to donate, click here.

God bless you through the many chapters of life.

Love,

Glenna

Goodbye, House.

Have fun, Wagon!

One Less Thing

I realized my self-talk whispers “ok, one more thing” over and over each time a new daily challenge arrives. This came to my attention when suddenly I experienced a fifteen minute window where I soaked in the joy of One-Less-Thing instead.

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My car dashboard mirrors my life with its scattered warnings. The tire maintenance light is forever “on”. I’ve had 5 nail punctured tires over 5 months.

The service engine light greets me each morning. The oil change guy hooked up a gadget reader to tell me the light is nothing to worry about, but I wonder. The brake light won’t go out even when the emergency brake is released. I stopped looking up what the other lights mean in the manual.

The dashboard reminds me of the running narrative in my mind. It goes something like this: I’m still sick. Stress is not helping me get well. Drop the kid off at school. Go to work. Repeat. My voice refuses to come back. The cat puked. -One more thing. I need to make dinner. Sweep the house. Keep trying to sell the house. Clean the bathroom. Move the laundry. I really should write a letter or send a care package to our deployed son. What just fell off the house?! -One more thing. If you sit down, you’ll fall asleep. Get up. Give Hubby the light weight fork because it is easier for him to manage. Position his shoes in a way that will help him be less likely to fall. Move his phone to his next location so he is not thrown off balance by carrying something when he travels inside the house. Help the remaining kid with college applications. I need to go to Lowe’s. Heavy duty caulk. A new vacuum bag. Take out the trash and recycling. Prepare for presentations at work. Who do I need to call back? Have I followed through on all work tasks? Scoop litter box. Check personal email to see if anyone has responded to my manuscript query letters. Send more queries. Do we have gas in both cars? Pay bills in a way that hopefully does not cause an overdraft. It’s going to be close again this month. Is Hubby breathing? Is the cat breathing? I really need to make a vet appointment. -One more thing. There are other people I want to check in with. I text them. There are other people I would like to be there for. My capacity is too narrow. I can’t believe he hasn’t been able to work for a year. We need some mobility equipment. That will have to wait. The kid needs an eye appointment. -One more thing. I can’t make that work financially. How many hours of sleep can I get if I go to sleep right this minute? Why can’t I fall asleep? And so forth.

I try not to complain out loud. “Just keep swimming” as Dory says. But seriously, if there is a Santa out there who wants to buy our house so we can leave and start over, that would be GREAT.

Today I uprooted this tree growing into our fence and felt delighted by the image. Yes, we are ready to be uprooted.

In an attempt to make extra cash, I placed an ad to be a Pet Sitter. I can squeeze in dog walking and more cat litter scooping. I can love on animals and give neighbors peace of mind. The first response? Someone needs help with a cat until they get out of jail in February. So many thoughts. Bless their heart. Sigh….

One day I will not feel so stuck. I visualize selling a manuscript and being in an affordable and accessible home. One day I’ll be in the land of all three. I have learned hard lessons. I can do better.

This week our youngest got a job. Go kid! And he broke my heart by saying, “You won’t have to worry about Christmas, Mom, ’cause I’ll be able to buy my own presents.” The sentiment is good. The reality hurts.

A new job means he needs new pants. We make a plan to go to the store Wednesday. I secretly stress about how to afford the pants, but I think we can make it work. I don’t want him to know how close we are cutting it.

On Tuesday evening I drag my work bag into the house as the guys say, “We have a surprise.”

There on the kitchen table are new pants one day early. Hubby even used a coupon. In my book, that’s hot. Hubby had a decent afternoon and they worked together. I hear that the wheelchair got stuck in the JCPenny door, and they figured that out too.

In the moment, I physically felt something fall off the to-do list. One. Less. Thing. This felt magical. I soaked in the joy for fifteen intentional minutes. I smiled in my own home. This surprise felt so good!

This was a glimpse that things can be better. Will be better. I will trust the process.

To all those who struggle, I send you a giant cyber hug. You can do this. We can do this. Deep, slow breaths.

And now I must go.

The cat puked.

Love,

Glenna

Eyeballs On Row4ALS

They finally caught my full attention after months of me casually following them on Instagram.

“They” are a team who is preparing to row across the Atlantic ocean!

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On board will be the first person with ALS to be part of such a feat.  You can read Alan’s story on their website http://www.row4als.org.

As I type the Row4ALS team is in Spain preparing for their December to February journey.  Their goal is to raise money to cure ALS.

I am concerned that they do not have enough social media followers!  Please follow or like Row4ALS on Instagram or Facebook!  They have a Twitter account too, but it does not seem as active as Instagram and Facebook.

As readers know, ALS has hit our family hard.  I am inspired by the Row4ALS team.  Most mornings when I wake up, I pull the covers up and ask for a hug from Jesus.  Then I read verses from the Bible.  Then I look to make sure Hubby is breathing.  Then I watch the latest on Instagram from Row4ALS.

Go Alan & team!  Thank you for seeking a cure!

Deuteronomy 31:6 ~ Be strong and of good courage, do not fear nor be afraid…; for the LORD your God, He is the One who goes with you. He will not leave you nor forsake you.

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