Eyeballs On Row4ALS

They finally caught my full attention after months of me casually following them on Instagram.

“They” are a team who is preparing to row across the Atlantic ocean!

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On board will be the first person with ALS to be part of such a feat.  You can read Alan’s story on their website http://www.row4als.org.

As I type the Row4ALS team is in Spain preparing for their December to February journey.  Their goal is to raise money to cure ALS.

I am concerned that they do not have enough social media followers!  Please follow or like Row4ALS on Instagram or Facebook!  They have a Twitter account too, but it does not seem as active as Instagram and Facebook.

As readers know, ALS has hit our family hard.  I am inspired by the Row4ALS team.  Most mornings when I wake up, I pull the covers up and ask for a hug from Jesus.  Then I read verses from the Bible.  Then I look to make sure Hubby is breathing.  Then I watch the latest on Instagram from Row4ALS.

Go Alan & team!  Thank you for seeking a cure!

Deuteronomy 31:6 ~ Be strong and of good courage, do not fear nor be afraid…; for the LORD your God, He is the One who goes with you. He will not leave you nor forsake you.

Signature GSE

Welcome to Our Mess

Sweet Baby Jesus, I think with 100% praise and 0% sarcasm.

In the same moment when I’m both on the bathroom floor at under the toilet rim level and inside the sink cabinet level, I see the ancient WD-40 can.  Maybe I have seen the idea written on a meme or maybe someone wise mentioned it along the way, but I suddenly know exactly what I can do with said can.

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First, I spray the rusty cabinet hinges.  The doors adjust into their appropriate spots and squeak sounds disappear.  Second, I spray under the toilet rim, wait, add bleach to the bowl, and scrub.  Stubborn stains that I missed in past weekly scrubs begin to melt away.  It’s a toilet gunk miracle.

And all this happened after a friend installed new sink faucets.  Gasp!  He may have seen the gunk pre-miracle.  It also took place in the mostly off-limits for 20 years master bathroom.  Guests don’t go there.

But now they do.  In this challenging time for our family we’ve learned to be open.  There’s not a single off-limits room now.   Every step of the way has been about surrender.

Being honest with friends and strangers has led to more love than we could have imagined.  People who love Jesus also found room to care about us.

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One of my work philosophies is to meet people where they are without judgement and with listening ears.  In recent weeks that same kindness has been reflected back to us.  I see it in soft eyes and busy hands.  We are down to packing, moving what’s left of our furniture, carpet installation and a thorough cleaning.  This is doable.  Thanks will never be enough.  For my praying friends, please pray us through to the other side.   Our bodies and minds are weary, but God’s love is strong.

Psalm 31:1-5  In you, Lord, I have taken refuge; let me never be put to shame;
    deliver me in your righteousness.  Turn your ear to me, come quickly to my rescue; be my rock of refuge, a strong fortress to save me.  Since you are my rock and my fortress,
    for the sake of your name lead and guide me.  Keep me free from the trap that is set for me, for you are my refuge.  Into your hands I commit my spirit;
    deliver me, Lord, my faithful God.

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3 Songs of Surrender

And then the fridge broke.  Dear God, I can not handle one more thing breaking.

Quickly the Holy Spirit reminds me that this is a first world problem.  We go a week with the contents gone and the refrigerator doors open.  I surrender this too, Lord.  Take it please.  I have nothing left in my brain to solve this challenge.

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In a moment that reminds me there are no coincidences, I run into friends from a past small group at church.  Within 50 hours the fridge is fixed.  Hallelujah.  I continue other house projects with volunteer help as it is available.  Hubby has an extra tough week physically.  ALS seems to have lows and lower lows, then levels out.  There’s a pattern I can’t identify, but I know the clock ticks and we need to move to a more accessible home soon.  I look forward to the day when I can see him rest easier in a new environment.

I listen to music while painting.  Worship is powerful.  It is my battle cry and my surrender prayer.  Here are 3 songs that I listen to most through the brush strokes:

1. Who You Say I Am – Hillsong Worship.  When I feel like I have failed, this song reminds me I am a child of God, chosen, not forsaken.  While watching church online I share with Hubby, “I’m sorry.  We were blessed to work with almost 7,000 kids and families in the last 15 years, and maybe this work has been a failure for our own family.  It’s my fault.”  He kindly answers, “How do you know it’s failed?  Maybe not.”  God is bigger than what my limited view can see.  bitmoji-20181002082758_15385264950172. It Is Well – Kristene DiMarco & Bethel Music.  No matter what happens “through it all my Eyes are on You, through it all it is well…and it is well with me.”  “This mountain that is in front of me will be thrown into the sea.”  “The waves and wind still know His name.”  “So let go my soul and trust in Him.”

3. No Longer Slaves – Jonathan David & Bethel Music.  Fear and spackle are frequent companions these days.  This song reminds me “Love has called my name”.  “I am surrounded by the arms of the Father”.  “Let us sing freedom”.  Fear is not welcome, but it is a daily fight.

There are miracles in process all around me.  My angst is cast onto the Father continuously.

The Lord is close to the brokenhearted
    and saves those who are crushed in spirit.  Psalm 34:18

I can not explain the miracles and help that has shown up but for the grace of God.  To Him we give the glory.  One day we may list out these miracles for you.  To those who have literally been the hands and feet of Jesus, we thank you.  And thanks is not enough.

We carry on in the home stretch marking things off the to-do list along the way. 20181029_064305

When times are tough, what are your songs of surrender?  What keeps you going?  Do you have a worship battle plan?

3 Thoughts About ACE Scores

Uh, that got my attention, I paused during an online training this week.  I better get my act together.

The screen said that people with an ACE score of 6 or higher are more likely to die 2 decades prior to people with lower scores.  ACE stands for Adverse Childhood Experiences.  I’ve known for a couple of years now that my score is an 8.

3 thoughts:

1.  I am astonished by the number of people who don’t know about the ACE study.  Here is a link to learn more and to take the quick test:  https://www.npr.org/sections/health-shots/2015/03/02/387007941/take-the-ace-quiz-and-learn-what-it-does-and-doesnt-mean

2.  Share this information with friends, family, and co-workers so that they will know about ACEs too.  This can be helpful as people learn to address or heal personal wounds.

3.  Lead with love.  People may carry pain around without realizing it.  Perhaps you are the kind, patient person that someone needs today.

It’s the weekend and I am house project focused.  Our goal is to have the house on the market by November 10.  I look forward to a calmer way of life in a few months.  With the ACE score reminder I know my mind and body need a better pace in my adult life.  My stress level has been too high for too long.  I am beginning to understand that taking care of me is an acceptable priority.

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3 John 1:2 ~ Beloved, I pray that all may go well with you and that you may be in good health, as it goes well with your soul.

Take care of you,

Signature GSE

Scripture Spoke Louder

I find treasure each weekend as we prepare to move.  Most recently I discovered a 2-inch x 3-inch notebook from 1983.  The paper has yellowed.  The spiral wire feels rough like rust.  The pages are difficult to turn.

Inside are Bible verses from a time when I took every curly q of cursive writing seriously.  I was 11 years old in 1983.  My guess is that in Sunday School we wrote a verse or two each week.  The notebook is divided into Old Testament and New Testament sections, poetry, prophecy, and more.  I have no idea who my Sunday School teacher was for this weekly exercise, but he or she was wise.  What an excellent way to learn scripture.

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Almost every page contains Bible verses that have been with me nearly my whole life.  They reside not only in a dark corner of my basement moved from home to home but also in the foundation of my heart.

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Exodus 14:14, When adults have competing agendas and it is best to hold my tongue.

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Leviticus 19:4, When the boy broke my heart.  Uh, ok, boys.  Plural.  Worshiping another human is a trap often leading to disappointment.  I learned only God can “complete me”.

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Ruth 3:10, When I found strength in the fact that a gentle woman can still have power and grace.

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2 Samuel 22:4, When I trusted God to deliver me from less than nice people.  [Sidebar:  Have you heard that 1 in 25 people may be a functioning sociopath?  Check out a great book for more info:  The Sociopath Next Door.]

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Ecclesiastes 7:9, When I developed a slooooow fuse.  I don’t anger easily.  That is a blessing in my relationships.

Micah 7:7, When I feel scared or lonely and ask Jesus to wrap His arms around me as I go to sleep.

2 Corinthians 5:7, When I take healthy risks with hope for the best outcome.

John 3:16, When I maintain perspective on the greatest love story of all time.

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Mark 16:15, When I chose to write a Christian blog and Christian manuscript about freedom found in surrender.  Preach, sisters!

What scripture has spoken louder than your circumstances?  Is there a teacher you need to thank?  Or children in your life who will benefit from the time you take to build a notebook with them?

I am grateful for the caring adults who poured light into me even if it took 35 years for me to realize the lasting power of the wisdom they shared.

Glenna

Caregiver vs. Caregiver

Perhaps I should not write this while I still remember her license plate number.  This is fresh, y’all.

Let’s begin with one of my favorite quotes:

Forgiveness is not an occasional act, it is a constant attitude.  ~  Martin Luther King Jr.

It was a perfect breezy 80-degree morning, the kind of morning where it looks like the sun is gently kissing each surface around you.  Hubby left for work with minimal physical challenges.  I jump in the car early to go pick up snacks and water for a 24-person summer school field trip.  I feel joyful and have plenty of time to shop in our local grocery store.

I paid without feeling rushed.  I turn left out of the store to walk toward the ice chest.  I need two bags of ice.  Ahead of me is an elderly man shuffling his feet like Tim Conway from the old Carol Burnett show.  I guess he is in his late 80’s or early 90’s.

My mind goes two places.  One, I want to make sure I leave him plenty of room.  I walk behind my cart slowly.  Two, I find myself praying for him.  I thank God that this man has lived a long life and ask that he have a wonderful day.  Given his difficulty to walk, it is great that he is outside enjoying the weather.

I stop to place my hand on the ice chest door handle.  The man is well ahead of me at this point.  Suddenly my eye catches sight of erratic body movements further ahead of the man.  Jumping out of a white SUV parked curbside down by the liquor store is a woman near my age.  Her arms flail.  Her voice is loud.

“You’re about to be run over, Grandpa!” She bellows.  I notice her slim figure looks good in white pants.  Odd the things you pay attention to sometimes.

Aw, I think maybe she is trying to banter with him.  To connect.  To have fun.

Censored beep, beep, beep later I realize she is not being playful at all.  She is livid.  At me.

She yells my direction, “Some people are so rude!”

What?!

I attempt to tuck in my inner Martha.  Martha, my mom, had a short fuse made of magnesium.  I can let this go.

And then my mouth opens anyway.

“Maybe from your perspective,” I send her way.  “But from where I am I was giving him plenty of space and even saying prayers of thanksgiving for him.”  I know that probably sounded stupid, but it was true.

After all, the woman is beyond us and there is even a brick column obstructing her view.  From where her SUV is parked it would be easy to jump to conclusions.  There’s no way she can accurately assess the distance between Grandpa and me from her location.

And then her mouth opens.  She combines words like prayer and the b word and other words I’m not going to type.

Sigh…this day had been going so well.

Is she coming after me?  My faux Terminator eye surveys our surroundings.  In seconds I assess where the security cameras hopefully are, what time it is, how my body will flatten hers if she hits me first, and contemplate if I can withstand assault charges.  I am not proud of this.  I’m just saying I was raised in a way that is ready for unanticipated action.  Generally, I am a pleasant person.  I try to maintain a kind face even in these strained moments.

I finish putting ice in my cart.  Grandpa shuffles into the liquor store and the angry lady gets back into her SUV.  I step into the parking lot so I can make a mental note of her license plate, then turn right to find my car.

I maintain awareness as I load my trunk.  I know my insides are shaking a little bit.

Sitting in the car I text a trusted BFF to ask for prayer.  A day once going well now feels scary.

When back on the road, I see the SUV.  The lady still looks erratic.  She runs her hands through her hair many times and might be yelling at Grandpa.

I drive, pray, go over the checklist for the day.  Crisis adverted.

Then a deep truth hit my heart.  That lady is a caregiver for Grandpa.  I don’t know if she is every day, but this day she is.  As my mind softens, I dismiss some judgement about how if she really cared about Grandpa she wouldn’t send him alone into either store and especially not the one with hundreds of glass bottles.  It occurs to me that maybe as a caregiver she is angry.

And sometimes I feel angry as a caregiver too.

I just felt anger toward a fellow caregiver.  With good reason, I saw her as an enemy first.  But what does the Bible say about our response to enemies?

But I tell you, love your enemies and pray for those who persecute you.  Matthew 5:44

Do I love her?

How long did it take me to pray for my enemy?  Answer:  38 minutes

It was easy to recognize Grandpa’s struggles, but it was hard to recognize the possibility of her struggle.  It took me 38 minutes to pray for her.  Maybe she needed to let off steam and I was an easy target.  To follow are a few additional thoughts about invisible caregiver pain:

1.  People don’t read minds.  The SUV lady couldn’t read my mind and I couldn’t read hers.  Lord, May we try to give people grace first instead of judgement.

2.  Perspective is varied.  Depending on where you are standing or what you are doing at the moment before you look up makes a big difference in what you see.  I suspect if the woman had been parked behind us or beside us she may not have jumped to the conclusion that Grandpa was in danger.

3.  How often do we miss the caregivers?  We sign up for meal trains, we bring things to patients who are sick, but what can we do for caregivers?  There are other blogs and articles with ideas on this.  I encourage you to keep caregivers in mind when you support people who are hurting.  Lord, Please help caregivers to be comforted, seen, and heard.  Also, help me to be sensitive to the journey of others.  Amen.

Be strong and courageous, and do the work. Do not be afraid or discouraged, for the Lord God, my God, is with you. He will not fail you or forsake you until all the work for the service of the temple of the Lord is finished.  1 Chronicles 28:20

When Was The Last Time

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When was the last time he took my hand and we took a walk together?  When was the last time he could stand up from the couch without thinking about how to stand?  How many years ago was the last time he could golf–his all-time favorite activity?  When was the last time our home did not involve daily groans and pain?

As a mother, I vowed to cherish everything about our sons:  every flutter as they swam in the womb, first grins, first toys, first words.  My heart skipped beats when their little hands kept reaching for mine well into elementary school years.  I knew their childhood would end.  I treasured their soft skin and cuddles.  I would not squander those moments.  And while storing up sweet memories I welcomed the fact that one day our boys would move on to a greater destiny beyond their mom’s heart.

What I did miss was treasuring simple moments with my husband.  Yes, I appreciated him.  Yes, we tried to spend time together.  Yes, we overcame the fact that opposites really do attract and chose to draw closer to God, our translator, to communicate.  Yes, we did not give up on our marriage or each other.  But did I truly cherish him?  I didn’t think he was leaving.  And he hasn’t left, but sometimes it seems like he isn’t all here either.  My mind reaches for precious moments of ease that I forgot to store in my brain.

Grief arrives in many forms.  Sometimes we grieve the loss of a job or relationship.  I’ve endured the pain of people close to me passing away.  You may have too.  And now I endure the pain of watching chronic illness ALS-21 steal expectations we had for our present and future.  Our youngest child is a teenager.  I thought we had more time before hubby and I grew old together.  But symptoms of old slowly moved into our home decades too soon.  We are like the metaphoric frog in the pot of tepid water who didn’t know the heat was about to turn up.  We sat calmly in the pot not noticing that the water began to boil our circumstances.

I spend hours each week clearing “stuff” out of our house.  It feels like we are in a race against the clock to move to a more accessible place.  We had plans to remodel that will never happen while we are here.  I feel the ugly emotion of jealously toward people I haven’t met who will do projects here that I likely will not see.  Tears drizzle my checks occasionally over leaving our home of 20 years too soon.  What really got me down deep was when our oldest son was home on leave from the Air Force.  A couple nights he didn’t want to go see friends.  He shared that he just wanted to enjoy the walls of our home because he knew he might not ever again get to come home to this address.

On the flip side of the moving coin, I celebrate the thought of being in a home where my husband doesn’t have to crawl upstairs at night.  Are we old enough to require a no steps living arrangement?  Apparently yes.  This thought process requires me to clear clutter faster.  Time is not waiting for me.  I’ve quit looking at other homes online because I need to focus on the task of leaving this home first.  I trust God will provide the right place for us at the right time.

Therefore, do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.  Matthew 6:34

I often tell myself that our situation could be worse, that there are worse things that people deal with.  These thoughts push me along to be grateful for the good things in our lives that we do have, or things that are better because we’ve had to adapt.  For example, I’m not sure my husband has ever verbally appreciated me more than he does now.  His kind words mean a lot to me.  We are also more forgiving and appreciative these days.  It seems like we have reached a calm place where we are slow to anger and less judgmental.  I thank God for the side benefits of sticking together and pushing through tough times as a team.

Are you grieving a loss or expectation of any size?  It takes time to grapple with it.  If you have tips or favorite verses about grieving that you would like to share, please comment.  I’d love to hear from you.

 

 

Surrender ~ Noun & Verb

13350430_10154248049089508_2287349314446751966_oI had about 18 days to prepare for an Appalachian Trail section hike in 2016.  Everything on the outside of my body appeared like this was a bad idea.  I had not exercised much in the winter or spring that year.  Meanwhile, everything on the inside of my body screamed that this was not only a good idea but also the only idea.  I had to go.

Before departing the word “surrender” rolled around in my head and got my attention in multiple songs.  Surrender became my trail name and my goal.  I thought about the word a lot as our four-women team hiked.  The below picture is part of the trail.  It was rocky and tough terrain.  This path represents how my life felt at the time.  Our family was amid big changes and stress.  I grumbled to myself that the sharp and wobbly rocks were fitting as a metaphor for that year.
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I wrestled and searched my heart for ways to surrender to God’s will in my life.  I read that the word surrender can be a noun meaning the action of yielding or a verb meaning to cease resistance.  I knew I absolutely needed to submit both as a thing and a process.  My mind rolled around and through the definition as I prayed to God for answers.

And this is a picture of a portion of the hike where I felt solidly surrendered.  Whatever You want, God.  Whatever You want.  Show me.  Please.  Mostly what I heard back from our Higher Power was simply to take the next step, then the next, and repeat.  In the walking, I felt peace.  Hot, sweaty peace.  I would keep walking even if it meant I had to crawl eventually.

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Since returning from the trip I’ve continued to take next steps.  One of the steps was to write down the adventure of that week.  The trip provided so much humor and gut-wrenching self-reflection that I suspect others may glean something for their own journey while reading about it.

I’m still learning about the word surrender.  In 2018 the word has led me to a specific prayer.

Dear God,

Lead me.  I trust You to lead the way. 

And, I promise to do the work You ask of me. 

Amen

The manuscript and book proposal about the trip is written and I’m seeking representation to take even more steps.  We’ll see what happens.  In the waiting, I appreciate the following verses:

1 Peter 5:6-7 NIV

Humble yourselves, therefore, under God’s mighty hand, that he may lift you up in due time.  Cast all your anxiety on him because he cares for you.

2 Corinthians 12:9a NIV

But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.”…

And then the rest of that passage I struggle with:

2 Corinthians 12:9b-11 (NIV)

Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me.  That is why, for Christ’s sake, I delight in weaknesses, in insults, in hardships,in persecutions, in difficulties. For when I am weak, then I am strong.

Boast, really?  Ugh.

The NLV says “take pleasure in my weakness”.

The KJV says “glory in my infirmities, that the power of Christ may rest upon me.”

My personality teeter totters on the extrovert and introvert line.  This week a participant at a workshop I facilitated commented at the end, “Wow.  I have thought for two years you are super quiet, but you’re really not.”  I would say I try not to waste words.  [sidebar:  That was a great event by the way.  I will post the workshop guide in a different work blog soon.]

I have a hard time blogging sometimes because it feels “showy”.  I have matured enough now to know that I need to do what God has placed on my heart through skill, talent and calling.  I may not sign up to boast per se, but I can laugh at myself and give glory to God, allowing His power to work through my story in whatever way He leads.

I anticipate that you will hear more from me about the word surrender and the trip as the days ahead unfold.

God bless you,

Glenna

 

 

Fat You Can Come Back From

We all open mouth and insert foot sometimes.  To follow is an example.  It was an early morning coffee meeting and the person across the table from me talked about running into a mutual friend from our past who is obese.  They paused while looking at me with body language that said oops, waved their hand dismissively in my direction, and then said out loud, “Not like fat you can come back from.  Worse than that.”

Oh.  I see.

Now…I am strong.  I feel healthy except for my weight and feel comfortable in my own skin.  In fact, I have some great fat clothes these days.  I can pull it together so to speak, toss the hair, and be in public just fine.  I mean, I’m only 3 sizes bigger than my favorite size.  And 3 is a small number, right?!  I rationalize.

I’ve thought about their phrase for a few months.  They back pedaled a bit to offer excuses for my stressful life and then gave up trying to course correct their tongue.  I politely shuffled them on to the next meeting topic.

One of my truths is that I have a bad relationship with 20 pounds.  We are on again and off again.  Sometimes I can gain and lose the same 20 pounds twice in a year!  And it’s not just 20 pounds that is the issue.  If I could successfully keep off the first 20, then there’s practically a whole kindergartener that I need to lose additionally to reach what charts say I should weigh.

I am super blessed that my husband has never in 26 years of knowing me ever said even one negative thing about my body.  This is on the list of the things I love about him.  Meanwhile, his body is failing him/us with the diagnosis of ALS-21.  Our reality is that my body needs to step it up to be healthier in the caregiver role that we/I face.

Reality in mind, I’m officially breaking up with those pesky 20 pounds again with the goal to, like Taylor Swift says, “never ever ever get back together”.  I’m back at the gym and using the Lose It! app to track calories.

Here are a couple people on Instagram who inspire me in the journey of weight loss:

FatGirlFedUp – I marvel every time Lexi posts side by side pictures of her wedding day at 485 pounds vs. present day after losing over 300 pounds.  She shares her story and food/exercise tips.

DiscoveringDanny – Danny is Lexi’s husband and workout partner.  Their journey is worth following.  I adore a sweet love story.

1 Corinthians 6:19  Do you not know that your bodies are temples of the Holy Spirit, who is in you, whom you have received from God? You are not your own.

I am reading Made to Crave by Lysa Terkeurst.  I’ve read it before, but this time I am answering the questions at the end of each chapter and being honest with myself.

I’ll let you know how the break up goes!  If you want to connect on the Lose It! app, I am GSE or glennasue34@yahoo.com.

God bless you,

Glenna

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