Tag: #ChronicIllness

But Not The Baby’s Wagon

Published on by Glenna S. Edwards1 Comment

Once upon a time, back when I thought I was tough, when I believed wholeheartedly that life will be what you make it, when I never cried at movies or much of anything besides a broken heart, my future husband and I took a road trip.

He played his favorite songs through the car cassette player. “Listen to Sammy Kershaw,” he said. “If we are going to get married, then we have to promise never to let this happen.”

The song was Yard Sale. The lyrics played:

Cardboard sign says yard sale
Real estate sign says sold
Family picnic table
Holds all that it can hold
On the grass and on the sidewalk
Well there must be half the town
Ain’t it funny how a broken home
Can bring the prices down

Oh they’re sortin through
What’s left of you and me
Paying yard sale prices
For each golden memory
Oh I never thought
I’d ever live to see
The way they’re sorting through
What’s left you and me

You left two summer dresses
In the backyard on the line
A lady just brought them to me
Says she thinks they’ll fit just fine
Well there goes the baby’s wagon…

By the time the baby’s wagon is sold, my lips are quivering.

Tears. What the heck?

And ever since that 19 year old day, I joined in on his idea of divorce not being an option.

When Hubby was diagnosed in 2017 with ALS-21, soon could no longer work, and he had to crawl if stairs were involved, I saw the dim light arrive over the home we once were determined to grow old in together.

I knew we’d have to leave.

And I knew our very real children’s wagon was in the garage. Do our sons need it anymore? Uh, no. Did we love it and use it a lot? Yes. That wagon toured the neighborhood many days, helped with Halloween, Cub Scout popcorn sales, and gardening.

I have cried about leaving our home for weeks while keeping my body sorting, packing, dragging, etc. Moving out of a home you’ve lived in over 20 years is more of a feat than a project. Plus, when leaving is a “have to”, the work can be extra painful. My heart resisted while my body ran the metaphoric marathon.

Then I learned that a 5 year old is part of the new family who bought our house. Turned out, she would like to have the wagon.

Take that, ALS-21! You can not have our babies’ wagon!

And that made me feel good. The wagon will live on in our neighborhood for a little while longer.

We are 4 hours into condo life without overlap with the house. There is a peace in seeing Hubby get around much better here. My mind & tired body will settle into the peace soon I hope.

Speaking of marathons, next Sunday Lisa Zupan is running 26 miles for two causes. One of the reasons is to help purchase a scooter and car lift for Hubby. If you would like to donate, click here.

God bless you through the many chapters of life.

Love,

Glenna

Goodbye, House.

Have fun, Wagon!

The In-between

Published on by Glenna S. Edwards

Welcome to the in-between weekend.

  • Christmas lights are hit or miss now.
  • It is hard to remember today’s date.
  • New Years is coming.

I’ve heard some grumbling and sadness around town.

Maybe you are a Have-Not who listened to The-Haves talk about expensive gifts received.

Perhaps you just heard, “but we’ll always be friends” as he shared he is serious about a new relationship.

It’s not even break up season yet. You were blindsided.

Or your mini vacay to-do list is not close to done.

Did you use all the energy you had to cope during a time of grief?

Fear not.

To the person who needs to hear this today, you are valued exactly as you are.

You matter.

Order and routine will be restored.

It’s ok to take a nap.

Embrace what is and give it to God. Allow the feelings to pass through your body so you can move on. If you fight emotions, the pain lasts longer.

As for that to-do list, tackle something manageable first.

This is a good time to pray, praise, rest, connect to your source.

Reset for 2020.

Remember there is a time for everything. Don’t beat yourself up in this short window.

Ecclesiastes 3:1-11 There is a time for everything, and a season for every activity under the heavens: a time to be born and a time to die, a time to plant and a time to uproot, a time to kill and a time to heal,

a time to tear down and a time to build, a time to weep and a time to laugh, a time to mourn and a time to dance, a time to scatter stones and a time to gather them, a time to embrace and a time to refrain from embracing,

a time to search and a time to give up, a time to keep and a time to throw away, a time to tear and a time to mend, a time to be silent and a time to speak, a time to love and a time to hate, a time for war and a time for peace.

What do workers gain from their toil? I have seen the burden God has laid on the human race. He has made everything beautiful in its time.

How may I pray for you? Dm me with prayer requests for the new year.

Love,

Glenna

Romantic Book Club

Published on by Glenna S. Edwards3 Comments

I hugged our snowman tree this week.

Mr. No-Name-Snowman is prickly but part of the family and the right height.

I miss simple things like Hubby being able to stand for a hug. The hair band Cinderella was right about some things, “Don’t know what you got till it’s gone.”

Fortunately Hubby is not gone. We find new ways to connect. I have heard that long marriages are like several marriages in one. I believe that. We are in a new act of our musical.

Last month we agreed to begin a two person book club. We have Hoopla to download free library audio books. Hubby picked the first one.

First Flight Girls

We took multiple weeks to independently finish The Flight Girls by author Noelle Salazar. It is a love story and about women in aviation during World War II. I started over once because I had a hard time remembering who was who among the character names. Once I re-listened to the first nine chapters, then I engaged eagerly to find out how the story ends.

We checked in with one another about chapter progress. I pondered how our book review would go. This is a totally new activity for us together as a couple.

I remembered one of the best lessons I know about marriage dreams: tell your spouse exactly what you visualize happening in the new fun. Do not assume they will know. What do I want?

“You write three questions about the book, and I’ll write three questions,” I share. “No random trivia unless beyond the three questions that promote conversation. No yes/no asks. The goal is we have a nice dinner and talk about the book. We’ll light a candle or go to a handicap accessible restaurant. Cool?”

He agrees. We finish the book. We write our questions. I set the scene for a quiet dinner. He did not feel physically up to going out. We create an indoor picnic.

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We compared observations from the book as we took turns answering one another’s questions. Spending time enjoying one another’s thoughts warmed my soul.

Our home was quiet other than our words and the occasional pop of a candle. It was a good night to look into his blue eyes.

Love,

Glenna

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Colossians 3:14: “And over all these virtues put on love, which binds them all together in perfect unity.”

One Less Thing

Published on by Glenna S. Edwards

I realized my self-talk whispers “ok, one more thing” over and over each time a new daily challenge arrives. This came to my attention when suddenly I experienced a fifteen minute window where I soaked in the joy of One-Less-Thing instead.

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My car dashboard mirrors my life with its scattered warnings. The tire maintenance light is forever “on”. I’ve had 5 nail punctured tires over 5 months.

The service engine light greets me each morning. The oil change guy hooked up a gadget reader to tell me the light is nothing to worry about, but I wonder. The brake light won’t go out even when the emergency brake is released. I stopped looking up what the other lights mean in the manual.

The dashboard reminds me of the running narrative in my mind. It goes something like this: I’m still sick. Stress is not helping me get well. Drop the kid off at school. Go to work. Repeat. My voice refuses to come back. The cat puked. -One more thing. I need to make dinner. Sweep the house. Keep trying to sell the house. Clean the bathroom. Move the laundry. I really should write a letter or send a care package to our deployed son. What just fell off the house?! -One more thing. If you sit down, you’ll fall asleep. Get up. Give Hubby the light weight fork because it is easier for him to manage. Position his shoes in a way that will help him be less likely to fall. Move his phone to his next location so he is not thrown off balance by carrying something when he travels inside the house. Help the remaining kid with college applications. I need to go to Lowe’s. Heavy duty caulk. A new vacuum bag. Take out the trash and recycling. Prepare for presentations at work. Who do I need to call back? Have I followed through on all work tasks? Scoop litter box. Check personal email to see if anyone has responded to my manuscript query letters. Send more queries. Do we have gas in both cars? Pay bills in a way that hopefully does not cause an overdraft. It’s going to be close again this month. Is Hubby breathing? Is the cat breathing? I really need to make a vet appointment. -One more thing. There are other people I want to check in with. I text them. There are other people I would like to be there for. My capacity is too narrow. I can’t believe he hasn’t been able to work for a year. We need some mobility equipment. That will have to wait. The kid needs an eye appointment. -One more thing. I can’t make that work financially. How many hours of sleep can I get if I go to sleep right this minute? Why can’t I fall asleep? And so forth.

I try not to complain out loud. “Just keep swimming” as Dory says. But seriously, if there is a Santa out there who wants to buy our house so we can leave and start over, that would be GREAT.

Today I uprooted this tree growing into our fence and felt delighted by the image. Yes, we are ready to be uprooted.

In an attempt to make extra cash, I placed an ad to be a Pet Sitter. I can squeeze in dog walking and more cat litter scooping. I can love on animals and give neighbors peace of mind. The first response? Someone needs help with a cat until they get out of jail in February. So many thoughts. Bless their heart. Sigh….

One day I will not feel so stuck. I visualize selling a manuscript and being in an affordable and accessible home. One day I’ll be in the land of all three. I have learned hard lessons. I can do better.

This week our youngest got a job. Go kid! And he broke my heart by saying, “You won’t have to worry about Christmas, Mom, ’cause I’ll be able to buy my own presents.” The sentiment is good. The reality hurts.

A new job means he needs new pants. We make a plan to go to the store Wednesday. I secretly stress about how to afford the pants, but I think we can make it work. I don’t want him to know how close we are cutting it.

On Tuesday evening I drag my work bag into the house as the guys say, “We have a surprise.”

There on the kitchen table are new pants one day early. Hubby even used a coupon. In my book, that’s hot. Hubby had a decent afternoon and they worked together. I hear that the wheelchair got stuck in the JCPenny door, and they figured that out too.

In the moment, I physically felt something fall off the to-do list. One. Less. Thing. This felt magical. I soaked in the joy for fifteen intentional minutes. I smiled in my own home. This surprise felt so good!

This was a glimpse that things can be better. Will be better. I will trust the process.

To all those who struggle, I send you a giant cyber hug. You can do this. We can do this. Deep, slow breaths.

And now I must go.

The cat puked.

Love,

Glenna

In the Stillness

Published on by Glenna S. Edwards1 Comment

Chronic illness and caregiving are lonely places to be. And a lonely place can be smack dab in the middle of your own house. It is easy to be forgotten when you don’t show up hardly anywhere social anymore. It’s easy to miss friends even when you talk to them a lot via text.

This is one of those posts that is scary to write because I certainly don’t want to hurt Hubby’s feelings; however, he has said to me before maybe if you write the truth it will help other people not feel as alone.

I try to look at our situation like we’re lucky because we have each other. If you’ve ever lived this type of life, then you know that’s just as funny as it is true. I hold onto what I can. I miss him. And I hate that he feels (in my opinion) sick 80+% of the time. We each silently regret some of the things we could have been out doing in our early years together.

There is sweetness too. When he verbally appreciates my weak effort to do house chores. When he offers me quiet time in the house because he knows the silence soothes me. When he will go to the end of the Google search engine to research anything the boys or I need. And, I have my thoughts about him always being a man of integrity. That is one of the things that attracted me to him long ago. Recently he agreed to do an audio book club with me. I am hopeful the first book discussion will be fun from our different perspectives. I’ve listened through chapter 9 so far.

I ponder if this time of both rest and stress ultimately helps me focus more time on writing projects. The quote below got my attention this morning after waking up from another nightmare for the sixth morning in a row:

quote

Writers need a platform. Mine is growing. I am thankful that my Twitter followers are 18 away from 1,000 (as of the time of this post) which I read is an important step in jumping onto a propulsion algorithm. We shall see. Fingers crossed. It’s not about “likes” for publishers. It is about “would anyone buy her book?”. Since I am 60% introvert and 40% extrovert, this writer life climb is filled with internal conflict–hence the nightmares? Being on a team is joyful for me. Putting my neck out there solo causes a touch of angst.

I enjoy getting to know a little bit about people in the writing world who live around the globe. That part of the journey is fun. I just cyber-met someone who is on number 200 of her 300 bucket list items. How cool is she? Go girl, @VickyJones7.

So in this life filled with challenges, I say: Carry on in the stillness. Carry on in the Light. Carry on, dear readers, carry on.

Much love,

Glenna

Exodus 14:14 The Lord will fight for you; you need only to be still.