Chronic illness and caregiving are lonely places to be. And a lonely place can be smack dab in the middle of your own house. It is easy to be forgotten when you don’t show up hardly anywhere social anymore. It’s easy to miss friends even when you talk to them a lot via text.
This is one of those posts that is scary to write because I certainly don’t want to hurt Hubby’s feelings; however, he has said to me before maybe if you write the truth it will help other people not feel as alone.
I try to look at our situation like we’re lucky because we have each other. If you’ve ever lived this type of life, then you know that’s just as funny as it is true. I hold onto what I can. I miss him. And I hate that he feels (in my opinion) sick 80+% of the time. We each silently regret some of the things we could have been out doing in our early years together.
There is sweetness too. When he verbally appreciates my weak effort to do house chores. When he offers me quiet time in the house because he knows the silence soothes me. When he will go to the end of the Google search engine to research anything the boys or I need. And, I have my thoughts about him always being a man of integrity. That is one of the things that attracted me to him long ago. Recently he agreed to do an audio book club with me. I am hopeful the first book discussion will be fun from our different perspectives. I’ve listened through chapter 9 so far.
I ponder if this time of both rest and stress ultimately helps me focus more time on writing projects. The quote below got my attention this morning after waking up from another nightmare for the sixth morning in a row:
Writers need a platform. Mine is growing. I am thankful that my Twitter followers are 18 away from 1,000 (as of the time of this post) which I read is an important step in jumping onto a propulsion algorithm. We shall see. Fingers crossed. It’s not about “likes” for publishers. It is about “would anyone buy her book?”. Since I am 60% introvert and 40% extrovert, this writer life climb is filled with internal conflict–hence the nightmares? Being on a team is joyful for me. Putting my neck out there solo causes a touch of angst.
I enjoy getting to know a little bit about people in the writing world who live around the globe. That part of the journey is fun. I just cyber-met someone who is on number 200 of her 300 bucket list items. How cool is she? Go girl, @VickyJones7.
So in this life filled with challenges, I say: Carry on in the stillness. Carry on in the Light. Carry on, dear readers, carry on.
Exodus 14:14 The Lord will fight for you; you need only to be still.