Eyeballs On Row4ALS

They finally caught my full attention after months of me casually following them on Instagram.

“They” are a team who is preparing to row across the Atlantic ocean!

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On board will be the first person with ALS to be part of such a feat.  You can read Alan’s story on their website http://www.row4als.org.

As I type the Row4ALS team is in Spain preparing for their December to February journey.  Their goal is to raise money to cure ALS.

I am concerned that they do not have enough social media followers!  Please follow or like Row4ALS on Instagram or Facebook!  They have a Twitter account too, but it does not seem as active as Instagram and Facebook.

As readers know, ALS has hit our family hard.  I am inspired by the Row4ALS team.  Most mornings when I wake up, I pull the covers up and ask for a hug from Jesus.  Then I read verses from the Bible.  Then I look to make sure Hubby is breathing.  Then I watch the latest on Instagram from Row4ALS.

Go Alan & team!  Thank you for seeking a cure!

Deuteronomy 31:6 ~ Be strong and of good courage, do not fear nor be afraid…; for the LORD your God, He is the One who goes with you. He will not leave you nor forsake you.

Signature GSE

Welcome to Our Mess

Sweet Baby Jesus, I think with 100% praise and 0% sarcasm.

In the same moment when I’m both on the bathroom floor at under the toilet rim level and inside the sink cabinet level, I see the ancient WD-40 can.  Maybe I have seen the idea written on a meme or maybe someone wise mentioned it along the way, but I suddenly know exactly what I can do with said can.

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First, I spray the rusty cabinet hinges.  The doors adjust into their appropriate spots and squeak sounds disappear.  Second, I spray under the toilet rim, wait, add bleach to the bowl, and scrub.  Stubborn stains that I missed in past weekly scrubs begin to melt away.  It’s a toilet gunk miracle.

And all this happened after a friend installed new sink faucets.  Gasp!  He may have seen the gunk pre-miracle.  It also took place in the mostly off-limits for 20 years master bathroom.  Guests don’t go there.

But now they do.  In this challenging time for our family we’ve learned to be open.  There’s not a single off-limits room now.   Every step of the way has been about surrender.

Being honest with friends and strangers has led to more love than we could have imagined.  People who love Jesus also found room to care about us.

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One of my work philosophies is to meet people where they are without judgement and with listening ears.  In recent weeks that same kindness has been reflected back to us.  I see it in soft eyes and busy hands.  We are down to packing, moving what’s left of our furniture, carpet installation and a thorough cleaning.  This is doable.  Thanks will never be enough.  For my praying friends, please pray us through to the other side.   Our bodies and minds are weary, but God’s love is strong.

Psalm 31:1-5  In you, Lord, I have taken refuge; let me never be put to shame;
    deliver me in your righteousness.  Turn your ear to me, come quickly to my rescue; be my rock of refuge, a strong fortress to save me.  Since you are my rock and my fortress,
    for the sake of your name lead and guide me.  Keep me free from the trap that is set for me, for you are my refuge.  Into your hands I commit my spirit;
    deliver me, Lord, my faithful God.

Signature GSE

 

3 Songs of Surrender

And then the fridge broke.  Dear God, I can not handle one more thing breaking.

Quickly the Holy Spirit reminds me that this is a first world problem.  We go a week with the contents gone and the refrigerator doors open.  I surrender this too, Lord.  Take it please.  I have nothing left in my brain to solve this challenge.

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In a moment that reminds me there are no coincidences, I run into friends from a past small group at church.  Within 50 hours the fridge is fixed.  Hallelujah.  I continue other house projects with volunteer help as it is available.  Hubby has an extra tough week physically.  ALS seems to have lows and lower lows, then levels out.  There’s a pattern I can’t identify, but I know the clock ticks and we need to move to a more accessible home soon.  I look forward to the day when I can see him rest easier in a new environment.

I listen to music while painting.  Worship is powerful.  It is my battle cry and my surrender prayer.  Here are 3 songs that I listen to most through the brush strokes:

1. Who You Say I Am – Hillsong Worship.  When I feel like I have failed, this song reminds me I am a child of God, chosen, not forsaken.  While watching church online I share with Hubby, “I’m sorry.  We were blessed to work with almost 7,000 kids and families in the last 15 years, and maybe this work has been a failure for our own family.  It’s my fault.”  He kindly answers, “How do you know it’s failed?  Maybe not.”  God is bigger than what my limited view can see.  bitmoji-20181002082758_15385264950172. It Is Well – Kristene DiMarco & Bethel Music.  No matter what happens “through it all my Eyes are on You, through it all it is well…and it is well with me.”  “This mountain that is in front of me will be thrown into the sea.”  “The waves and wind still know His name.”  “So let go my soul and trust in Him.”

3. No Longer Slaves – Jonathan David & Bethel Music.  Fear and spackle are frequent companions these days.  This song reminds me “Love has called my name”.  “I am surrounded by the arms of the Father”.  “Let us sing freedom”.  Fear is not welcome, but it is a daily fight.

There are miracles in process all around me.  My angst is cast onto the Father continuously.

The Lord is close to the brokenhearted
    and saves those who are crushed in spirit.  Psalm 34:18

I can not explain the miracles and help that has shown up but for the grace of God.  To Him we give the glory.  One day we may list out these miracles for you.  To those who have literally been the hands and feet of Jesus, we thank you.  And thanks is not enough.

We carry on in the home stretch marking things off the to-do list along the way. 20181029_064305

When times are tough, what are your songs of surrender?  What keeps you going?  Do you have a worship battle plan?

Whistle Stop For Self Care

I saw the train at the top of the hill on two previous trips.

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Once again I head toward Cleveland to take a class.  Surely I could stop at “that exit with the train restaurant” this go round.

But by the time I finish home duties Thursday there is no way I can make the trip before midnight.  Shucks, no train.  Hmmm, if I can slip away from the class right away the next day…then maybe.  I need to return through Cincinnati before President Trump shuts down the road with his evening visit, and I need to get home to prep walls for paint and visitors.

Post learning on Friday I slip away asap and head to the location I find via Google:  Buckeye Express Diner.

Alone and near giddy, I drive up the hill.  I ration 30 minutes.  I need a late lunch and I crave minutes of peaceful adventure.

“First time?” The man at the counter asks.

I scan the menu posted on the wall and place my order before finding a seat in the train.  There is a juke box and TV screen.  I opt to look out the window.  I take time for slow breaths.  I attempt mindfulness.

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My server is sweet and attentive.  I wonder if people like her know how their random kindness is extra appreciated these days while I am tired and putting together the puzzle pieces of a home move.

The food is good.  Yum!  I eat half of it.  It is just enough.

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Time’s up.  I am reminded as I exit that there are more good things in the future.  There is special seating (with permission) in the caboose area.  I make a goal to sit there next time.

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Love,

Signature GSE

 

 

Not Forsaken

Is that a trick question? I wondered.

The Wells Fargo operator had asked, “Is this a time of hardship?”  I didn’t understand why she asked at first, but then realized it was because I paid the October mortgage bill on the last day of the grace period.  For me I felt like we were winning–aka, no penalty. The mortgage company sees this differently than I do.

A month ago I wondered how in the world we would get the house ready to sell.  Hubby’s muscles have left us.  The 16yo has to be taught how to do every odd job plus has homework.  The 20yo is 1526 miles away with the Air Force.  I have multiple jobs.  We gave most of our money away over the years doing the ministry I thought God asked me to do.  The clock is ticking.  We have one asset, the house, and it needs to go in order to start over.

Help comes from unexpected places.  Someone I work with said she’s been reading scripture and decided she would get people together to help.  Two miracle gift cards showed up to help purchase paint.

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I prepped the house as best I could and busy friends took time to help me move furniture around and patched a ceiling hole.  A neighbor and co-worker helped me sell other furniture and miscellaneous items to make room and to assist with the cost of more paint and supplies.

October 13 came and I had little idea who would come.  I thanked God in advance for whatever muscles that would arrive.

First, dear friends near my age came along with a 32yo new dad who could choose to be anywhere but chose to paint with purpose.

Around mid-day two young guys arrived.  I thought they were going to be disappointed that the basketball goal was already sold the hour prior.  “We’re here to paint,” they said.  When one took off his sweatshirt and out popped an arm with Jesus’ face tattooed on his muscles, my tears were unavoidable.  I knew right then miracles are happening.  The hands and feet of Jesus are present.

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As the weekend progressed people came for different reasons.  Some said they want to give back because their life has been better lately.  Some because of their love for the Lord.  One couple came partly because familial ALS is in their family too.  I began to pass out house keys like candy.

One young man looked deep into my soul, sized up the situation, asked me to list out the projects that scare me, and promised he’d stay by my side until the jobs are done like he would for his own mother.  He’s 26 and has a lot of carpentry, plumbing, etc. skills.  Wow. Wow.  Wow.

We’ve been full steam ahead with volunteers ever since.  I’d love to say some of their names, but I haven’t asked for permission.  I do my best to thank them personally.

On Tuesday night I went with my best friend since birth to see Hillsong.  I had no idea how I could stand on my sore feet and I stressed internally that I should be home working.

During the song I Am Who You Say I Am God mushed my heart like Playdough.  In a prayerful time I felt the Holy Spirit tell me, “You answered the call.  You gave up a lot.  You never let go of the house or lifestyle, and you’re going to have to let go of that now too.  It will hurt.  And you will go on.”

Like the song says:

I am chosen, Not forsaken

I am who You say I am

You are for me, Not against me

…I am a child of God.

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The castle I painted for our sons is gone, covered by “falling snow” white semi-gloss.  We are packing for a new adventure.  I am struck how the answer is “surrender” every time I am perplexed.  I look forward to sharing the manuscript Surrender on the Trail with readers one day.  As it turns out the trail was merely the beginning of what I am learning about surrender.

Love,

Signature GSE

P.S.  Thank you to new and old friends from Springdale Nazarene Church and SNC Norwood who took time to help our family.  May you be blessed abundantly.

Dear Ed Sheeran

Before sunrise Hubby stumbles across the bedroom and kindly whisper mumbles, “Good morning.”

My response is internal, I don’t like mornings and I hate ALS.  I need your body to help me with this blankety blank moving sale and I know you can’t physically share the load.  I speak nothing.  To be fair, he helped in the ways he could yesterday.  I’m grumpy and tired from weeks of prep in a house with a to-do list that has gotten away from us.  ALS has stolen the feeling of team chores over the years.  The playbook has shifted.  Team means new things now.

My mind wanders to the letter I had wanted to write Ed Sheeran a while back.  I planned to say, “Wow.  You sing the most perfect lyrics for our marriage in the song “Thinking Out Loud”.  Please meet us in Pompano Beach, FL on our 25th anniversary weekend, bring a guitar, and sing that to us on the beach.  Just once please.  That would be cool.”

I pull back my inner crazy lady and did not send such correspondence.

On Saturday of our trip we figure out the mechanics of getting us both on the sand.  Once settled, YouTube plays the Ed Sheeran song.  Then we listen to the ocean waves for hours shaded by an umbrella.  That was my favorite day.

Sunday he rests and I suggest we do dinner out to officially celebrate.  Monday could be another rest day before navigating the airport with a wheelchair Tuesday.  Oh, the things I’ve learned.  For instance, there are indoor hills, PeopleIndoor hills.  Pacing ourselves is important in the approach to such phenomenon.

We arrive at public parking for the restaurant 5 minutes before our reservation.  The parking meter doesn’t work.  It’s humid.  The restaurant is across the street and upstairs.  We see there is an elevator down the road.  I clumsily pay through their online app.  I wonder if I look pretty.  We gals can fit 100 thoughts or more into such moments, can’t we?

As we roll to the crosswalk, we hear music.  The beginning chords play “Thinking Out Loud”.  Hubby says it’s a popular song so no surprise.  But in my head I’m like, The Universe got my letter!  Thanks, Ed.  Thanks, God.

The words follow us all the way to the restaurant.  The patio overlooks a boat dock.  Our table has a sunset view.  It is a lovely evening.

Peace & love,

Signature GSE

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When your legs don’t work like they used to before
And I can’t sweep you off of your feet
Will your mouth still remember the taste of my love
Will your eyes still smile from your cheeks

And darling I will be loving you till we’re 70
And baby my heart could still fall as hard at 23
And I’m thinking ’bout how people fall in love in mysterious ways
Maybe just the touch of a hand
Oh me I fall in love with you every single day
And I just wanna tell you I am

So honey now
Take me into your loving arms
Kiss me under the light of a thousand stars
Place your head on my beating heart
I’m thinking out loud
That maybe we found love right where we are

When my hair’s all gone and my memory fades
And the crowds don’t remember my name
When my hands don’t play the strings the same way
I know you will still love me the same

‘Cause honey your soul could never grow old, it’s evergreen
And baby your smile’s forever in my mind and memory
I’m thinking ’bout how people fall in love in mysterious ways
Maybe it’s all part of a plan
I just keep on making the same mistakes
Hoping that you’ll understand

But baby now
Take me into your loving arms
Kiss me under the light of a thousand stars
Place your head on my beating heart
Thinking out loud
That maybe we found love right where we are

So baby now

Take me into your loving arms
Kiss me under the light of a thousand stars
Oh darling, place your head on my beating heart
I’m thinking out loud
That maybe we found love right where we are
Oh maybe we found love right where we are
And we found love right where we are

Capacity

I love to learn, especially about human behavior and social change.  The toughest human subject for me to observe, though, is me.  Learning about reasons for my own behavior, habits, and struggles is the hardest set of knots to untie.

There are things we understand logically in our mind long before we accept the same logic in our heart.  Lately the word capacity rolls around in my head like an old-fashioned marble.

I am the gal who didn’t finish Lysa Terkeurst’s book The Best Yes: Making Wise Decisions In The Midst Of Endless Demands, which is really about how to say no.  I probably didn’t finish because I said yes to something and put the book aside.  I also didn’t finish the book Boundaries: When To Say Yes How To Say No And Take Control Of Your Life by Dr. Henry Cloud & Dr. John Townsend.  I am a book finisher.  So, the fact that I didn’t finish reading either book may point to pattern.  Uh, yes.

The pattern goes all the way back to a 6th grade Happy Gram where the teacher wrote about me “she always does more than necessary to create excellent work.”  While that felt good at the time, now I’m not sure that was the happiest of words.

I am at a crossroads where I wish I had more to give when I have given more than I had.

So, I began saying no to projects last week.  I said no to projects I normally would be honored to complete.  Right now I need to spend time with our Higher Power, spend time with some family and friends, write and create the next chapter of life.  Every decision going forward is considered along with the question: Do I have the capacity?  I suspect wisdom and capacity are closely linked.  We shall see.

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An unattractive picture from the end of the Surrender Trail 2016 that captures how I felt then and maybe how I feel right now too!

Proverbs 4:7 (NIV) The beginning of wisdom is this: Get wisdom.  Though it cost all you have, get understanding.

Do you have wisdom in this area?  How do you measure and make choices about capacity?

Why #WildWednesday

The first time I used #WildWednesday on an Instagram post, hubby said he was a little concerned what I was up to.  I blog Wednesdays and Saturdays on the steady with a few special occasions sprinkled into the mix.  Wednesdays are extra special to me.

We were married five years before children arrived.  Wild Wednesday is a term we used long ago before two people became three, then four.  Being young and the lowest seniority at each of our jobs meant we often worked weekends.  When off days fell on Wednesdays we could take quick road trips.  The world seemed quiet and travel costs were less expensive mid-week.  #WildWednesday is a nod to a sweet time.

On this Wednesday I am still thinking, praying, and meditating about the 3-Day Surrender Experiment.  Coming up Saturday I plan to post about “capacity”.  In the meantime, I am feeling a little wild indeed, wild about cutting down shrubs and tidying landscaping outside our home!  My imagination chopped down ALS a few times too.

Caregiving means more than caring about someone else.  This week caregiving involves sawing gnarly trees and bushes while singing the song “All By Myself”–not the verses in the melancholy Celine Dion way, but belting out the chorus in a proud anthem type way.  Happy Wednesday, y’all!

Colossians 3:23  Whatever you do, work at it with all your heart, as working for the Lord….

SURRENDER – 3 day experiment, day 2

God wacked me over the head with a song this morning.

I spent quiet time yesterday and early today poring over every word of Proverbs 3:5-6.  I personalize the words.  Trust in the Lord with all my heart…not my understanding…submit…He will direct my path….

Leaving home for outsourced biscuits and gravy (don’t judge), I ramble with God in the silent car:  I committed to share this surrender experiment.  I’m not sure I have much to say, God.  Is surrender acknowledging Your power?  I gratefully let go of any power I thought I had.  Really.  My body aches every day with this crazy clean out the house effort. It was all I could do to resist taking a muscle relaxer at 6am.  I can’t do that because I need these daylight hours…yes, I need You too.

Driving downhill sunshine flutters through leaves into the car.  I hear the words HERE NOW loudly in my ear/mind.  I recognize that phrase is a song title by Hillsong United that I haven’t heard in a while.  I sing some of the words:

Here now.

Cause I know that you are here now.

It makes no sense, but this is grace.

I know you are with me in this place….

I continue to sing.  My voice raises in worship.

And then it hits me.  I am overcome thinking and KNOWING that surrender brings God up close.  Our Higher Power is ever present.  When we surrender it is in those moments that we are in total closeness, togetherness, and in acknowledgement of God’s love.

Huh.  I’ll be chewing on that thought for a while.  What do you think?

Also, God is love therefore it should not surprise me the love I’ve felt both for God and for people in the last two days.  Random people:  The mother of a 3-year-old and 6-month-old at the laundromat, a pregnant cashier at Bob Evans, the man at Great Clips with a suicide prevention tattoo…and not so random:  my husband, sons and friends.  If you poke my arm heart emojis may float out of me.

Here is the verse for day 2 along with my surrender list continuation:

1 Peter 5:6-7 (NIV) Humble yourselves, therefore, under God’s mighty hand, that he may lift you up in due time.  Cast all your anxiety on him because he cares for you.

5.  I surrender my path.  God, take the lead.  I trust You know a better way.
6.  I surrender debt.  God, please clear the way to debt free living.  I hand over the mistakes made when we inaccurately counted the cost of what it would mean to live in the non-profit world with a corporate world house.
7.  I let go of fears related to ALS in our family.

Now back to sorting, trash bag gathering, and lugging items to Goodwill.

If you chose to join me, how is your surrender experiment going?  Am I on to something?  What are you discovering?

Sidebar:  Do you see a face in the clouds with the rainbow picture?

Love,

Glenna

 

When Was The Last Time

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2009 Shaw Farm

When was the last time he took my hand and we took a walk together?  When was the last time he could stand up from the couch without thinking about how to stand?  How many years ago was the last time he could golf–his all-time favorite activity?  When was the last time our home did not involve daily groans and pain?

As a mother, I vowed to cherish everything about our sons:  every flutter as they swam in the womb, first grins, first toys, first words.  My heart skipped beats when their little hands kept reaching for mine well into elementary school years.  I knew their childhood would end.  I treasured their soft skin and cuddles.  I would not squander those moments.  And while storing up sweet memories I welcomed the fact that one day our boys would move on to a greater destiny beyond their mom’s heart.

What I did miss was treasuring simple moments with my husband.  Yes, I appreciated him.  Yes, we tried to spend time together.  Yes, we overcame the fact that opposites really do attract and chose to draw closer to God, our translator, to communicate.  Yes, we did not give up on our marriage or each other.  But did I truly cherish him?  I didn’t think he was leaving.  And he hasn’t left, but sometimes it seems like he isn’t all here either.  My mind reaches for precious moments of ease that I forgot to store in my brain.

Grief arrives in many forms.  Sometimes we grieve the loss of a job or relationship.  I’ve endured the pain of people close to me passing away.  You may have too.  And now I endure the pain of watching chronic illness ALS-21 steal expectations we had for our present and future.  Our youngest child is a teenager.  I thought we had more time before hubby and I grew old together.  But symptoms of old slowly moved into our home decades too soon.  We are like the metaphoric frog in the pot of tepid water who didn’t know the heat was about to turn up.  We sat calmly in the pot not noticing that the water began to boil our circumstances.

I spend hours each week clearing “stuff” out of our house.  It feels like we are in a race against the clock to move to a more accessible place.  We had plans to remodel that will never happen while we are here.  I feel the ugly emotion of jealously toward people I haven’t met who will do projects here that I likely will not see.  Tears drizzle my checks occasionally over leaving our home of 20 years too soon.  What really got me down deep was when our oldest son was home on leave from the Air Force.  A couple nights he didn’t want to go see friends.  He shared that he just wanted to enjoy the walls of our home because he knew he might not ever again get to come home to this address.

On the flip side of the moving coin, I celebrate the thought of being in a home where my husband doesn’t have to crawl upstairs at night.  Are we old enough to require a no steps living arrangement?  Apparently yes.  This thought process requires me to clear clutter faster.  Time is not waiting for me.  I’ve quit looking at other homes online because I need to focus on the task of leaving this home first.  I trust God will provide the right place for us at the right time.

Therefore, do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.  Matthew 6:34

I often tell myself that our situation could be worse, that there are worse things that people deal with.  These thoughts push me along to be grateful for the good things in our lives that we do have, or things that are better because we’ve had to adapt.  For example, I’m not sure my husband has ever verbally appreciated me more than he does now.  His kind words mean a lot to me.  We are also more forgiving and appreciative these days.  It seems like we have reached a calm place where we are slow to anger and less judgmental.  I thank God for the side benefits of sticking together and pushing through tough times as a team.

Are you grieving a loss or expectation of any size?  It takes time to grapple with it.  If you have tips or favorite verses about grieving that you would like to share, please comment.  I’d love to hear from you.